Ozzy is a loveable young man and is full of character.
If he could he would live his life inside You Tube where he escapes to. Ozzy hates having his haircut amongst the things and he also hides away from strangers. These may be common traits amongst many kids but i must tell you Ozzy has Autism and my eyes have been opened to this condition.
Having met Ozzy recently Mum told me
“Well you’ve met my Ozzy now so you know we’re not exaggerating, he’s disabled and has a complex neurological disorder but we continue to fight for him, his autism isn’t who he is!”
So what is Autism….. Autism is a lifelong developmental disability that affects how a person communicates with, and relates to, other people. It also affects how they make sense of the world around them.
It is a spectrum condition, which means that, while all people with autism share certain difficulties, their condition will affect them in different ways. Some people with autism are able to live relatively independent lives but others may have accompanying learning disabilities and need a lifetime of specialist support. People with autism may also experience over- or under-sensitivity to sounds, touch, tastes, smells, light or colours.
I asked Ozzy’s mum about Autism and have looked on websites about it. When I asked her what he difficulties were that she had encountered she told me….
“I’d say the biggest problem is once you get the autism diagnosis, you get discharged from the paediatrician and specialist children’s centre and there’s nothing to replace that, you don’t get loads of therapy like people think, in fact you don’t get any help at all. With schooling it’s a choice between mainstream and hope he will cope, but the LA have to agree. Or you could choose a special school where they’re more experienced but all the other kids have disabilities, so there’s less chance of him learning social skills.”
Pretty disheartening really I feel!
The causes of autism are still being investigated. The National Autistic Society (NAS) welcomes research into all areas which may further our understanding of autism and at this there is no cure!
I have read horror stories of parents who struggle to come to terms with their son’s/daughter’s disability. I hear how they have issues at school and how some schools are awful. I have also read happy things and praises of some schools and teachers so in my opinion it comes down to an individual’s way of dealing, coping and understanding each child with autism. It is very re-assuring to parents that their child’s in safe and capable hands. Ignorant strangers don’t help as they wont know the situation and may just think the child is being rude, naughty or just ignorant themselves. It is a sad day when we judge people without getting to know and understand them. Whats the saying…. “Never judge book by its cover?” Seems so apt that somany people do this andante preach how they would have dealt with that rude child perhaps who refused to answer them and stared into space!
Mum and Dad are brilliant. they have a daughter, Robyn, who is only 6 months old so they really do have to work hard. Of course, as parents they love their children and that love is evident from the moment you meet them.
As a Specialist Nottingham Wedding Photographer I was honoured to be asked to photograph this young man and I learnt a great deal. So much more needs to be done to raise Autism’s awareness and also the way we as a society see this disability. More needs to be done by the Government of this country and more needs to be done now.